On 10th September 1997 we decided that we should make the world know more of Hirschsprung's & the vunerable children. The reason for this was Alex Cooper who died tragically of undiagnosed Hirschsprung's disease. Since then others have come to our attention. Their stories and pictures can be seen below

Its our hope that with better knowledge children will no longer have to suffer nor die anymore.

Please help us to allow Doctors, Nurses and parents to be more informed about Motiliy disorders so that other children do not have to die.

Although death due to Hirschsprung's is rare, it must always be remembered that like these lost children, that it does happen.

If you would like your child to be remembered here then please contact us