So Who are We?
The group was formed in 1997for it parents like yourself. We wanted to enable the faciltiies that allows parents and suffers to help each other and help them feel they are not alone any more. Our aim is to contact parents whose children are supprting from bowel motility problems and offer them support. We also want to contact the medical profession and work with them to raise the awareness of these 'secret' provblems.
Gerry & Lisa who run the group, do it in their 'spare' time and receive no remuneration for it. In fact it costs them money to run it.
On a day to day basis the group is run by Gerry McGregor living in the UK, and Lisa Busha who lives in the US. As you can see we belong to no particular country.
The Members
The members you will find will change during your time with us but we hope the friendship and support never changes. Members come to us for a number of different reasons fear, in search of knowledge of their child's illness but mostly for support, to find others like themselves. To find people who understand what they mean when they talk about the problems their child is having, the family are having and the fears and doubts they themselves are having. So stop feeling alone.
People then stay for a short time or for ever. You will find that the membership comprises of
- Parents of newly born baby's diagnosed with motility problems.
- Parents of children who have had motility problems for all of their lives.
- Parents whose children although have had treatment they are still having problems.
- Parents whose children are now starting to live their live without problems and want to give encouragement to others.
- Adults who want to help.
Gerry McGregor
Gerry is an adult in his just in his 50's, living in the UK. In his 40's he started developing motility problems again. After years of not knowing what Hirschsprung's really was he wanted to know. It was while hunting on the internet that he found Kim, on of the founders and through that friendship he found that after 40 odd years he could at last talk about his problems. He even spoke to another adult who had HD, the first time in over 40 years that he had done that. As personnel came and went, Gerry offered his computer skills to Kim and became responsible for the website. From that, Kim offered him the big responsibility of helping to run the group and then eventually running totally.
Our group is mainly an internet group but don't worry if you do not have a computer, you can contact by phone or write to us for help. Gerry & Lisa are not medically trained so please don't expect medical answers. We can offer guidance and support and maybe point you in the direction to find answers to those medical questions.
People who join not only find support but find friendship, a friendship that stays well beyond the time that you are members of the group.