Parent Contact
The following parents have offered themselves as parent contacts in order to try and help answer your questions regarding their past experiences as well as offering their encouragement.
Please remember that they have NO medical training at all and can
only pass on their experiences.
| Australia | South Australia | Gina | Son of 5 with Short Segment HD |
| Kylie | Son of 2 with Long Segment HD & HAEC | ||
| Canada | Prince Edward island | Rachel | Daughter of 6 with Total Colon HD |
| Italy | Ruth | Son of 6 with Short Segment HD | |
| New Zealand | North Island | Nicola | Daughter of 7 with Short Segment HD |
| S. E. Asia | Singapore | Edwina | Son of 3 with HD |
| South Africa | Belinda | Son of 3 with TCHD | |
| U.K. | Midlands, England | Tracey | Son of 14 with HD, not diagnosed until 5. |
| Gerry | Adult aged 55 with HD | ||
| Northern, England | Sue | Son of 12 with HD & Down Syndrome | |
| Northern, Scotland | Helen | Son of 8 with HD & Irrigation Line | |
| U.S.A. | Georgia | Karen | Adult with HD & daughter of 10 with Total Colon HD |
| Louisiana | Jenna | Step son with TCHD | |
| New England | Christine | Daughter under 1 year with HD | |
| Ohio | Michelle | Son under 1 year with HD | |
| Valerie | Son of 4 with HD | ||
| Pennsylvania | Lori | Daughter of 21 with HD | |
| Sherry | Son of 4 with Short Segment HD | ||
| Tennesse | Cynthia | Son of 7 with Short Segment HD | |
| Texas | Lisa | Son of 8 with HD and GERD | |
| Washington State | Lisa | Son of 10 with Total Colon HD and NID with an Ileostomy Daughter of 6 with Long Segment HD and NID, |
|
| Shari | Son of 4 with Short Segment HD |
To contact them double click on their name and your email box will appear.
If you feel that you could offer advice to parents then please contact us at INFO and we will consider your request.